Welcome!

So here's the Reader's Digest version for those of you who are new to my blog.... My 39 year old husband, David, was diagnosed with a hideous and deadly cancer in
April of '08. We were told he'd likely die in less than 4 months. Obviously, that diagnosis turned us inside out and shook us to the core. At the time, our boys were 12 and 4... can you say 'fucking nightmare'??? I spent the next 14 months being his 24/7 caregiver and advocate... never leaving his side unless it was to get the boys to or from therapy or their cancer support groups. Cancer and the hell that it brings became our universe. And yet, I was able to get myself to a place where I was depending on my faith.... existing on a plane of pure gratitude. I focused my energies on recognizing the blessings that cancer had brought to our lives... yes, there ARE blessings that come with such a dire diagnosis.
Things were good. David miraculously entered remission in April of '09. I was looking forward to the next few months being our 'summer of healing' as a family. And then my world stopped. He left me... left US... on 6 June 2009. And FYI... he told me he was ending our 18 year marriage in a note. As if that wasn't bad enough, he had left me for a 'friend' who also happened to be married. Nice. The next few months are a blur... I descended into a deep, dark depression, and David's vicious treatment of me didn't help. He was running as fast as he could from everything associated with cancer, and that included me... our family, our home and the entire life we had built together. Things went from bad to worse when his cancer returned with a vengeance. He began treatment once again, and I had to dig deep to help him and make things as easy on him as possible. I even offered to have him move home so I could care for him through his treatment. As it turns out, it was a good thing he didn't take me up on that. The hateful way that he treated me during that time would have made caregiving for him an unbearable situation. I KNEW he was dying... nobody else did, because he fed them all kinds of bullshit... but I knew. Because of that, I focused on the boys and made sure they were with their daddy as much as possible.
His final months were a living nightmare... a kind of pain and darkness for which there are no words. No human being, no matter who they are or how they lived their lives, should have to suffer the horrific pain and endless indignities that David did. In spite of everything, I was with him constantly, much to the chagrin of his girlfriend and his mother. 'Too fuckin bad' was my theory. I wanted my boys to see that I NEVER turned my back on their dad. And I didn't. I continued to advocate for him in the hospital... fighting to get him the meds and the specialists he needed. I was there during his final moments of consciousness. I took Reilly to say goodbye to his dad, just before he slipped into that state. I was there when he died. I ID'd his body at the funeral home. I planned his funeral and his Celebration of Life. I placed his ashes in the wall of the Columbarium at the Naval Academy. We had spent half of our lives together, and though I was no longer in love with him, I did those things out of respect for the life that we shared and the family that we created.
The 6 months since he died have brought more changes. I struggle daily to untangle the financial disaster he left me, and I'm fighting like hell to keep our home. The boys are now 15 and 7 and trying to learn how to move forward in their lives without their daddy. I had to get a part-time job after spending 15 years as a full-time mother, and I'm doing everything I can to trim the fat so we can afford to stay where we are. My boys NEED the stability and comfort that come with remaining in our home and community, and staying in their schools. To that end, I will fight with every fiber of my soul to ensure that those things happen.
My greatest blessing is that I now have an incredible man in my life... a man who is thoughtful and loving, strong and sensitive, hilariously funny, and who loves me just the way I am. He is authentic. He knows who he is and is completely comfortable in his own skin. It certainly doesn't hurt that he's 11 years younger than I am and sexy as hell. :0)
Yes, my boys are struggling in many ways... the therapy and support groups continue... and I still have MUCHO 'death business' to handle. That said, I am starting to believe that there might be a happy future ahead... for all of us.
The past almost 3 years have been quite an emotional roller coaster, to say the least. Writing has been the most important part of my day, every day, since this journey began. I am once again being put in a position where I have to learn to survive... spiritually, emotionally, physically, financially... you get the picture. My hope is that I can hold on to my faith, find a moment of joy in every day, be the best mother I can possibly be, and hopefully... one day... emerge back into the light.
December 2010

07 February 2011

Happy Monday!

Well hello my friends.... oh, how I've missed you! Yes, I was sick as a DAWG all weekend, and no... it was definitely NOT my regular tummy troubles. Some heinous stomach virus that I did NOT enjoy... although, I did manage to lose a good 5 pounds. Nice! :0)


Comfort Zone Camp.... OH. MY. GOD. I don't know what else to say. What an incredible, amazing, BRILLIANT organization!!! It was a very full weekend for both boys... many tears, but lots of laughter too. The best part? It was, ABSOLUTELY, a life-changing experience for Reilly. 
I don't know if I really touched on it before, but Reilly went to camp COMPLETELY against his will... kicking and screaming the entire way. I told him he was entitled to feel however he wanted to about it. All I asked was that he be open to it... "just be open to the process" is what I asked of him. I am beyond thrilled to tell you that the kid was not only open to it... he embraced it, ran with it and immersed himself in it completely. He came home SO inspired... SO full of self-confidence, and feeling truly loved and understood. He talked and talked and talked for HOURS on the way home. :0) They have asked him to come back as a junior counselor.... yes, he's old enough!... and he's ready to start his training TODAY!


Yesterday, when all of the parents, guardians, etc, arrived, the first thing we did was have a meeting with the director of camp operations. This guy, Pete, runs ALL of the camps that they host all over the country... including in California. I didn't know CZ was in California... yahoooo! He is darling... amazing... wonderful... as were ALL of the CZ volunteers. He gave us a brief overview of the events of the weekend, and then we had a chance to hear from each of the Healing Circle leaders. Each age group had their own Healing Circles, and they keep the groups to 8 kids or less so every child has plenty of time to share. The Healing Circles are done several times a day, and the kids can talk or not... whatever they choose. Sometimes they opt to have their Big Buddies speak on their behalf. Rory had his Big, David, talk for him on a number of occasions. He would tell David what he was feeling, and then David would share it with the group. We also had the opportunity to meet one on one with the Healing Circle leaders, and really hear about how our kids fared during the camp. I'm SO proud of Rory... he really opened up and shared his whole story. Yay!!!!! His sweet friend Skylar was in his Circle, and she made a point to make him feel extra special. They have these special pins that they give out to all of the campers. Anytime they see someone being brave or doing something they think is special, they tell them why they deserve a pin and then give it to them. Skylar stood up and told their Circle that she & Rory have been in a support group together for a couple of years, and that Rory NEVER talks about his dad during group. ( I didn't know that.) She told him how proud she was that he shared his story and that she thought he was very brave. And keep in mind, Rory ADORES Sky, so coming from her.... that was HUGE. He was over the moon to show me the 19 pins he earned throughout the weekend. :0) 


Then I went and spoke to Reilly's Healing Circle leaders. Holy shit. You could have knocked me over with a feather. First of all, they both GUSHED about what an "awesome kid" he is, and said that the way he shared and interacted all weekend "set the tone for the entire group". They even went so far as to say that they didn't think their group would have had nearly the energy or the bond that they did, had Reilly not been there. They told me how his willingness to share, as the 'cool kid', gave the others the opening they needed to feel safe. They went on to say that the compassion and understanding he showed to the other campers was beyond anything they'd ever seen in a 15 year old. And he didn't save it just for his group... he was, yet again, incredible with the little guys, and went out of his way to check in on Rory and make sure he was okay. 


Yeah... I was sobbing. 


It gets better. I hope you're sitting down, cuz this next lil tidbit sent me reeling. Rei's head Healing Circle leader told me that of all of the families she's worked with, she considers US to be the one "success story" that she's seen, with regard to the way that we honor David on a daily basis. The fact that we talk about him all the time... tell funny stories... look at pictures... celebrate his birthday... all of it. Holy shit. To hear that from a professional... I can't express to you what that meant to me. Obviously, I have a very complicated relationship with David.... even more so, now that he's dead. That may sound odd, but it's true. I have a great many feelings about him... many of which are not positive... but I work EVERY DAY to focus on and remember the good things... for the boys. True, I spill my true feelings here.... but I keep that shit away from them, and it's harder than you'll ever know. To get that validation from a mental health professional made me feel incredibly good. Maybe I'm doing something right. 
 Rory & his Big Buddy, David
Reilly & his Big Buddy, JamaRR

Next, all of the kids came in so we could begin the memorial service. Each Healing Circle got up and did a short presentation. Some of them were very sweet... some cute... and some heartbreaking. Sprinkled in between them, were campers who wanted to come up to honor their loved one. Some kids had their loved one's favorite song played, some read a poem they'd written, some danced, and Miss Skylar told a precious story. It was beautiful... uplifting... and soul shattering... all at the same time. 


Finally, we went outside to do a balloon release. Each of the kids had written a message to their loved one and tied it to a balloon, and we released them all at the same time. Watching the kids as they followed their balloons on their trip up to heaven... there are no words. 


I have SO much more to tell you about the INCREDIBLE people that make up Comfort Zone... these are all trained professionals... social workers, therapists, psychologists, phychiatrists... and they all volunteer their time to bear witness to our children's grief. Knowing that there are people who have been part of our lives who aren't willing to do that... well, that just makes them all the more amazing. 


Look around you. Be thankful for all that you have. Hug your kids a little tighter. And embrace the journey. 


Much love...
Shan
xoxo


More pics to come on Shutterfly...

5 comments:

  1. This post brought tears to my eyes...I am so happy for the boys :) These camps are so amazing and I am thrilled Reilly is going to train as a counselor. So many of the campers at Camp Okizu were once campers. Both of my kids can't wait until they can become Jr Counselors. I told them I would support them during the summers in college if they wanted to volunteer their time there. These counselors are truly angels on earth.

    hope you are feeling better. I must have caught a bit of that bug today too as I was tossing my cookies this morning. Doing much better tonight. Sucked that I had to work today too :(

    aot

    r~

    ReplyDelete
  2. Love the balloon story! My friend lost her baby boy when he was 9 months old and we did a balloon release at his service. On the drive home one of the balloons game down out of the sky in front of our car miles away. I started to sob. He son had the same heart surgeon as my oldest son. It was an amazing moment.

    ReplyDelete
  3. Haaaa! Figured out how to post! Used John's email since I have yahoo email not google!
    ~Heidi

    ReplyDelete